News and Announcements

When you look at the momentum behind the LymeX Partnership today, it’s easy to forget that it started with a simple, powerful idea: the Lyme Innovation Roundtable.

Long before this became a multi-million dollar federal framework, a dedicated community of data advocates, clinicians, and patient champions came together to prove that crowdsourced, patient-driven data could transform how we approach complex illnesses.

The Journey at a Glance

• 2019–2020: We launched our first Healthathon and Health Plus initiatives, running three small, targeted proof-of-concept grants.

• The Intermission: Innovation isn't always a straight line. Following that initial momentum, the project went through a quiet four-year period. While many early project updates were lost to old, deactivated web servers, the core community and data survived.

• The Breakthrough: After years of steady advocacy, the rigorous data and success metrics from those first three small grants spoke for themselves. Federal leadership recognized the model's potential and committed to a historic $25 million investment to officially establish the LymeX Partnership.

Preserving Our Roots

We have intentionally preserved our original 2019 and 2020 blog posts right here on the platform in our new Historical Archive section.

We keep them visible because they are a testament to grit and continuity. They prove that the frameworks we are using today to tackle invisible illnesses and cost-of-illness tracking are deeply rooted, stress-tested, and built to last.

To everyone who shared an idea in the early days, and to everyone submitting solutions across our new 2026 tracks today: thank you for being part of this legacy. Let’s keep driving it forward!

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