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Patient-Driven Innovation

Ideas listing

6 Ideas
15 Votes
5 Comments
11 Participants

Have you used any of the following kinds of resources or apps in your experience with Lyme disease? Tell Us About Your Experience! Let us know what were the most helpful aspects, and what could have made it better? Please upvote any of the ideas that you may have used in the past, and comment to tell us your experience. If there is a resource or category that you find missing, we invite you to add your own by clicking the button 'Share Here' below.

 

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Peer to Peer Mentoring

Peer to peer support helped me when I was first diagnosed and I have seen it help patients with Lyme disease and other chronic conditions.   My Personal Experience Another Lyme patient helped me early in my journey with Lyme disease.  When I was a teenager, I contracted sepsis twice, was put on IV antibiotics and both times all of my symptoms improved. My father was convinced that a bacterial infection was causing my symptoms, but no doctor would give it a second thought....

2 Score
Comments 0
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LymeX Roundtable: Insights on Patient-Driven Innovation

The nonprofit Center for Open Data Enterprise (CODE) has developed a one page summary of high-level takeaways from the discussions that we had at the Roundtable for patient-driven innovation. This summary presents existing tools and opportunities for high-impact innovation, including tick-focused innovation, patient data gathering, caregiver and patient support, and clinical resources.

2 Score
Comments 0
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Clinical resources

These help educate physicians and other healthcare providers about Lyme disease, for example, by making new research easily accessible or drawing attention to issues such as the potential mental health impact of Lyme disease.

2 Score
Comments 1
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Virtual caregiver and patient resources

These help people with Lyme disease and other illnesses in some cases by helping them track their symptoms, improving access to practitioners who specialize in Lyme disease, or providing virtual caregiver functions.

2 Score
Comments 2
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“Quantified self” tools to transform invisible symptoms into visible data

Often linked with wearables, these tools can transform subjective symptoms into quantified data. Emerging technologies can make historically invisible illnesses visible by quantifying hard-to-track symptoms, such as tachycardia and sleep disturbances. A wide variety of commercial products now provide wearable heart and blood pressure monitors, as well as sensors to monitor respiration, temperatures, blood oxygen, and other factors.

5 Score
Comments 2
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Tick-Focused Innovation

Some of the currently available digital tools focus on ticks and ecology, the infection process, provide education to prevent infection, or help track the locations and prevalence of infection. 

2 Score
Comments 0
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