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LymeX Roundtable: Insights on Patient-Driven Innovation

The nonprofit Center for Open Data Enterprise (CODE) has developed a one page summary of high-level takeaways from the discussions that we had at the Roundtable for patient-driven innovation. This summary presents existing tools and opportunities for high-impact innovation, including tick-focused innovation, patient data gathering, caregiver and patient support, and clinical resources.

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Clinical resources

These help educate physicians and other healthcare providers about Lyme disease, for example, by making new research easily accessible or drawing attention to issues such as the potential mental health impact of Lyme disease.

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Virtual caregiver and patient resources

These help people with Lyme disease and other illnesses in some cases by helping them track their symptoms, improving access to practitioners who specialize in Lyme disease, or providing virtual caregiver functions.

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“Quantified self” tools to transform invisible symptoms into visible data

Often linked with wearables, these tools can transform subjective symptoms into quantified data. Emerging technologies can make historically invisible illnesses visible by quantifying hard-to-track symptoms, such as tachycardia and sleep disturbances. A wide variety of commercial products now provide wearable heart and blood pressure monitors, as well as sensors to monitor respiration, temperatures, blood oxygen, and other factors.

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Tick-Focused Innovation

Some of the currently available digital tools focus on ticks and ecology, the infection process, provide education to prevent infection, or help track the locations and prevalence of infection. 

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Ask a question

Do you want to know more about Health+ LymeX, or Lyme Innovation in general? Ask us here by adding a comment. All questions are welcome.

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Say Hello!

We welcome you to introduce yourself with the community. Comment on this post and tell us your name, where you are from, and what your hopes are for the future of Lyme Innovation. 

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Alex Wilson

Washington, D.C., United States

Joined this community on Sep 30, 2020

Bio IT Specialist in the HHS Office of the Assistant Secretary for Health

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